Keywords
blood transfusion
parental experience
psychosocial support
healthcare management
How to Cite
Abstract
This qualitative study explores the experiences and perceptions of parents of children with sickle cell disease, with a particular focus on their experiences with the transfusion process. Through semi-structured interviews conducted with parents accompanying their child to the Mabanga Mixed Medicine Hospital, the analysis highlights the psychosocial, economic, and emotional dimensions of disease management. The findings reveal a significant emotional burden, pronounced social isolation, and limited access to information and community support. Parents express clear expectations regarding free healthcare, blood availability, psychological support, and improved communication. Furthermore, they express hopes mixed with concerns about their child’s educational, professional, and social future. The results underscore the need to integrate holistic and psychosocial support approaches into sickle cell disease care policies.
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